For those who do not understand fibromyalgia.

Fibromyalgia is not a new disease. In 1815, William Balfour, a surgeon at the University of Edinburgh, described fibromyalgia. Over time, it has been described as chronic rheumatism, myalgia or fibrosis. Unlike diseases, syndromes such as fibromyalgia have no known cause, but they form a group of signs and symptoms that, unfortunately for the patient, are present at the same time. Rheumatoid arthritis and lupus are also syndromes.

Most of the symptoms and emotional problems associated with fibromyalgia are not psychological.

It is not a disorder in which “everything is in your mind”. In 1987, the American Medical Association recognized fibromyalgia as a true physical condition and a major cause of disability.

Fibromyalgia can be disabling and depressing, affecting the simplest of everyday activities.

-What things you should know about me:

1. My pain   – My pain is not your pain. It is not caused by inflammation. Taking your arthritis medications will not help me. I can not work because my body can not stand. It is not a pain that remains only in one part of the body. Today, it’s on my shoulder, but tomorrow it may be on one foot or it’s gone. My pain is caused by signals that hurt my brain, probably because of sleep disorders. It’s not very well understood, but it’s real.

2. My fatigue:    I do not feel very tired. I am seriously exhausted. I would like to participate in physical activities, but I can not. Please do not take it as personal. If you saw me buy yesterday, but today I can not help but clean the yard, it’s not because I do not want it. I pay the price to stress my muscles beyond their abilities.

3. My concentration problems. All those who suffer from fibromyalgia call these problems “fibro-fog”. Maybe I do not remember your name, but I remember your face. You may not remember what I promised to do for you, even if you told me a few seconds ago My problem has nothing to do with age, but it may be related to sleep disorders. I do not have selective memory. Some days, even, I have no short-term memory.

4. My clumsiness: If I stand or run behind the crowd, I will not pursue you. I have no control over my muscles to do it. If you are behind me on a ladder, be patient. These days, I take life and every step, one at a time.


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